Monday, August 2, 2021

Specialists vs Generalists

  Annamaria on Monday

 


Though I write today about my recent experience as a patient in healthcare in New York City, I prefer that you read this as a philosophical discussion, rather than a plea for sympathy from a person who's feeling sorry for herself. Self-pity is a trait akin to the plague as far as I'm concerned. We've all had enough of plagues for the past seventeen months. That said, here is my personal reading of western medicine, as practised at its most advanced level.

 

Imagine if your car were subjected to a dysfunctional system that worked like this:

 

One morning, you go out to your driveway to try to start your car, which worked perfectly well the day before. It won't start. You call road service, and they tell you that you must have a dead battery. They send a Battery Specialist, who comes and tries to recharge your battery. He even replaces your battery. But nothing he does restores your car to operating condition. The battery guy tells you that it must be the starter. He gives you the telephone number of a Starter Specialist. You are charged for this “service.”



You then have to have your car towed to a Starter Specialist. The specialist listens to your experience so far, and she replaces the car’s starter. The car still doesn't start. The Starter Specialist tells you that it must be the spark plugs. She gives you the telephone number of a Spark Plug Specialist. You are charged for this service.



 

You have your car towed to the Spark Plug Specialist, who replaces the spark plugs. But your car still doesn't start.

 

And so it goes...


The Maserati Alfieri!

This is the kind of experience I am having since my previously well-functioning body went haywire.  I count myself as an extraordinarily lucky person.  Until this episode, except for a few temporary and treatable issues, my body has been like a Maserati. All I have had to do is turn the ignition, put it in gear, step on the gas, and it roared ahead. I am enormously grateful for this great good luck that went on for decades upon decades.  Perhaps it is only now that I am experiencing what has plagued others forever—a body that needs a serious tune-up and no luck finding the right place to take it.

 

It might be just me, but…




 

So far, I have been to my primary care doctor going on five times. I have also been many, many times to a physical therapist, an acupuncturist, a therapeutic masseuse, and to a spine surgeon, and two pain doctors. I have been CT-scanned, MRI-ed, EKG-ed, x-rayed multiple times, and I have had my blood pressure taken scores of times.

 

The latest advice I have gotten is that I should see a neurologist. I have also been warned that getting an appointment with a neurologist in New York City at this moment might take months. (It is interesting to me that common expression is “see a doctor.”  If only.  Though a couple of docs I have seen are quite good-looking, “seeing” them so far has not been all that helpful.)

 

It is obvious to me that nobody knows what I really need, and there does not seem to be a person who understands enough about a whole human body to help me figure out what is going on in mine.


 

Americans have heard constantly over the past couple of decades about the rising cost of healthcare in the United States. Healthcare is more expensive here than anywhere else. In the gorgeous city where I live, it is also in its most advanced state. What I am wondering is how much of that enormous cost comes from the fact that there are so many brilliant specialists, certainly able to help people in incredibly useful ways.

 

But…

 

 The first step in curing any ill—medical or otherwise—is to identify the problem. Perhaps there are people in healthcare today whose specialty is Diagnostician.  In other words, a Generalist!  Perhaps it just so happens that the people I have gotten to “see” so far haven’t thought to give that person’s phone number.  

 

I said I wanted this to be a philosophical discussion.  If others are having similarly frustrating experiences, perhaps what the medical care system needs is better-defined problems before people go off half-cocked, trying a string of solutions, running up bills, and getting nowhere.



  

 

Years ago, when I was a generalist consultant in organisational effectiveness, I had a mentor, a brilliant man. He was the head of strategic planning for the world’s largest pharmaceutical company. The company’s issues where existential at the time. His name was Stan Molner. He hired me as a consultant to work with him, mostly because I was not a specialist in one type of problem.  His philosophy, as he expressed it, was: “If you have a problem and you jump to the conclusion that it is the physical plant’s design that is causing the trouble, you will hire an architect. The architect will design a new building. It's the only answer an architect can provide. If you are mistaken about the root cause of the problem, you will end up—at great expense—with a beautiful new building where you can go and live with the old trouble.”

 

YUP!

 

Perhaps this is why they call us patients!

 

In the meanwhile, here is the illustration for this month on my beautiful Rumi calendar!! 



10 comments:

  1. Yes, frustrating as hell, AmA, I'm sure. But, while I hear your complaint and agree with it (our medical systems are definitely, if not broken, certainly very poorly designed), your analogy between car repair and body (of the biological variety) repair is not entirely apt. A car has usually: 1 engine, 4-8 spark plugs, 1 starter, 1 water pump, 1 oil pan, a half dozen hoses and a half dozen belts, and a few other miscellaneous parts an systems. The human body has 23 pairs of chromosomes, containing roughly 6.4 BILLION base pairs, a large percentage of which, if installed backward (to use the car analogy) will cause a disease. It's kind of like comparing a modern state-of-the-art computer to a the switches, wires, lights, and outlets in your living room.

    So, while it's understandably frustrating when one finds oneself being ground up in the gears of the medical transmission, it's also not surprising. As much progress as we've made with "modern medicine," we're still very much in the stone age.

    It's like Bones told Kirk in Star Trek: The Voyage Home... "My God, Jim! They were going to drill a HOLE in his HEAD!!!"

    Nonetheless, I agree and sympathize completely with your complaint: if our food supply were run as poorly as our "medical establishment," we'd have all starved to death long ago. :-(((

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    1. Thank you, EvKa. It occurred to me while I was writing this blog that we understand automobiles because they were invented by people. Nature is not so easy to fathom. As a consultant, I spent a lot of time working with pharmaceutical companies, especially with their researchers helping them to communicate with people who were in decision-making positions who were not scientists. One of them recommended a book to me. Biochemical Individuality by Roger Williams changed the way I think about people. The book taught me that there is no such thing as an average person. The metaphor the author used was comparing the biochemistry of human beings to lakes. Every lake has things in common with every other lake, but no two are exactly alike.

      This I know is at the crux of what makes medicine so challenging. The conversation I would love to have with you about this is too complex to carry-on here. The problem is that, for me a person with some rare traits and conditions, “Better living through chemistry” doesn’t work properly much of the time. The way things are, companies research, invent molecules, and market medicines that will be extremely helpful, even life-saving for many people. But they can’t work for everyone.

      Oh how I would love to sit down with you over coffee or a glass of wine and talk this over.

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    2. I would love that talk, too. :-)

      However, like Michael mentioned, we're on the cusp of amazing advancements in medicine, which WILL make today's medicine look like the stone ages. Artificial intelligence, genetic engineering (which brought us the covid vaccines with astounding rapidity), and PERSONALIZED MEDICINES, created "on the spot" (well, within weeks or days) that are targeted specifically at YOU and your genetic soup... it's like we're reaching the crest of a trail over the mountains, and our eyes can see the vista beyond, but there are still many steps to be taken before we reach that crest and move beyond it. But we ARE approaching it. The next 50 years will make all of the medical advances of the past 150 years seem like almost nothing.

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    3. That's what I've also been told by people (like you) who know a lot more about it than I do. Now to live for the next fifty years...

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  2. Oh, hope you are OK, that your problems are diagnosed and you get a diagnosis and help.

    I'm fed up with the corporate medical "care" got recently. My doctor of 43 years retired last spring. I got an appointment with a doctor at a hospital medical center, but it's a medical school. So the doctor I got is young and inexperienced really doesn't know much.
    She didn't do basic tests that I had each year for 43 years or even a decent examination.
    Every single ache meant seeing a different specialist. With Covid, I am not going to anyone.
    Take care of yourself as much as you can.


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    1. You were right as usual, Kathy. One of the things that makes healthcare sometimes dysfunctional is the profit motive. As you imply in your mention of corporate medical care. Aspiring doctors often choose specialties based on their ability to earn a living in them. You can’t blame them for that. Many of them graduate with a quarter of a million dollars in debt. I think the path out of the medical-money morass is infinitely more difficult than the path for me to find someone to cure my ills. Boohoo.

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  3. I wonder if your generalist won't end up being an artificial intelligence system. While I wouldn't want a computer as a doctor and I here EvKa's point, such a system might be able to point you in the right direction. At worst it could cut out three quarters of your visits to the GP...
    For now, I do hope you get to the bottom (or top) of this soon...

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    1. Thank you Michael. My acupuncturist, whom I have known and who has cared for me for over 30 years, has said to me several times over the past year or two that one day doctors would be replaced by algorithms. The closest I’ve gotten to that is the two virtual office visits with docs in my current quest for relief.

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  4. So sorry to hear about all this. I hope you find someone who can identify--and treat!--the problem. As you were describing the specialists and their myopic view, I couldn't help but think of the Blind Men and Elephant parable. I wish you all the best.
    PS--looking forward/hoping to see you on Wednesday!

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  5. Sis, we are returning to NYC in ten days, for though Bouchercon was cancelled my doctor said return to the US rather than risk being stuck on a Greek island if the anticipated autumn armageddon comes to pass. After reading your post, perhaps being isolated amid ouzo, sea breezes, and a "slow slow" attitude isn't such a bad fate.

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