We are in the throws of the undignified name calling and ludicrous
argument that passes for political
debate over here. It will go on until May 7th when various reprobates will think they run the country. And hopefully keep out the way of those that actually do.
The hospital is being transferred from this to this..
The Death Star
The hospital is being transferred from this to this..
The Death Star
Some things are too important to be in the hands of politicians. I think Gordon Brown thought that about interest rates and handed them over to the Bank of England.
The NHS is a popular football for the various political parties to kick around while most of us believe that it is too valuable to be in the hands of any political party.
The helicopter landing pad
The helicopter landing pad
I have always
suffered from migraine but since February
they have changed character. From
the 'go away and leave me alone while my head feels like it is being skewered so I want to lie still and watch the kaleidoscope on my eyelids' type of migraine, to
something much. much worse. Rolling on the floor, banging my head off the tiles, pulling hair out type of pain. Short lived, but brutal.
Even I reckoned this was not normal.
new meets old or vice versa
Even I reckoned this was not normal.
new meets old or vice versa
Went to Gp and got stuff to stick up my nose as soon as the headache starts. This medicine works very well
but gave no clue as to what was causing the pain. He diagnosed cluster headache, often called the suicide headache because it is that painful. I am lucky that, with me, the pain is there and gone within thirty minutes and (so far) it is
always in the small hours of the
morning. But I can’t imagine living with that pain four or five times a day. If a patient does, the current treatment of choice is a having a brain stimulator
surgically placed in the deep part in the brain to derail the signals.
Fancy car park. With no spaces.
Fancy car park. With no spaces.
The only problem was my cluster headache is not in the part
of the head that gives cluster headache. So the GP referred me for a neurological appointment at the Southern General Hospital, known by locals as the Suffering
General. He said it was not urgent, the
appointment may take a while to come through. The subtext of that ( and what the political debate is always about) is that the waiting list is a bit long at the moment. But just to make it clear, if you really need it, it will
get done and the NHS will do it quickly. But if you can wait – you wait. Neurology is always busy as for some of their patients, waiting is a matter
of life and death. Mine wasn’t, Mine was just sore. So a routine appointment was requested and
came through within two weeks. On a
Sunday. Subtext, so busy they were doing Sunday clearance clinics. I had a thorough consultation with a neurologist who was very nice and very engaging. What did I think? What did she think? What did I think of what
she thought? Why can I not have cluster headache in the same place as everybody
else? Because it might not be cluster headache.
She recommended two MRI scans - brain and neck. Not urgent. The appointment for the scan
came through two days later. Eight o’clock in the morning.
Nice quiet surroundings for the patients
Nice quiet surroundings for the patients
And that was this morning.
By now, the neurologist and I had been thinking about Arnold Chiari malformation which means the bone at the top
of the spine is a bit wonky so bits of the brain start to slid down the spinal
canal. As you can imagine, that is a wee
tad sore.
This hurts!
But I am consoled that it only happens to folk with big brains. That is not really true but it’s my blog so I can say what I like.
This hurts!
But I am consoled that it only happens to folk with big brains. That is not really true but it’s my blog so I can say what I like.
It used to be thought of as a fatal condition but as scanning gets better it has been realised that a few folk are walking about with various versions in various degrees of malformation with no symptoms what so ever. Until something else annoys it. Like an old spinal fracture. Like mine.
Where exactly do we walk?
And when the
neurologist read about that, her little face lit up in a true light bulb moment. That
is now coming back to haunt you, she said with something approaching glee. I was still with the theory of big brain in a
wee head.
The Southern General is a big Glasgow Hospital, right on the side of the Clyde at Govan. It is slowly being rebuilt into a super hospital called the ‘death star’. It has become a local talking point as it has
been built with very little regard to patients.
And the fact that patients need transport.
Driving around the Southern General building site for an
hour and a half to get a parking place is common. Locals now need permits which they
have to pay for, to park their own cars in the streets outside their own house. Promises
of free buses, and patient transport have not yet come to fruition. The radiologist who dealt with me parks in
the garden centre a mile and a half away and walks it from there.
The hospital/
building site is about fifteen minutes drive from my house so I left at six thirty am for my eight am scan and got the last parking space
available on the first drive round. I sat
in the car waiting and writing the next book ( as Jorn said, any time, any place, anywhere) while the builders in front of me kept taking their clothes on and off like some
geriatric Coca Cola advert. I don’t know what they were wearing underneath
their t shirts, but it needed ironing. The old jokes are the best as Jeff proves time and time again.
The old hospital was
based in a Victorian Workhouse. If there was a fire, patients had to be strapped to their mattresses and bounced down the stairs. The hospital then had big wards, a stern matron, no MRSA, no talking back and stank of Dettol and boiled sprouts.
Now the whole scene is weird; builders everywhere, trucks, diggers, cement mixers, people
walking around confused and lost, taxis doing u-turns, wheelchair users bumping up
curbs, patients running from A to B, then B to A, posters telling folk where to go ( the posters have been drawn over as a new building was added or opened or closed ). There are over head tunnels temporarily connecting bits X to Z as Y has not been built yet. To get to the scanner, I had to walk for about twenty minutes from my
car, into a reception, upstairs, along a corridor, through a kitchen ( so it seemed), passed a few disused lift shafts, all the time following a
series of printed out signs sellotaped on the
wall, over tunnels, under ground until I bounced almost by accident into the MRI scanning reception. After the scan , the nurse took me by
the hand, across the hall, into an office, over some boxes and out a side door, and lo and behold, there was my car.
So the scanner has not been moved to the new bit yet so the waiting area was well worn, battle scarred and depressing. But it was spotlessly clean and the service
was second to none. So what if the gowns looked
as though they have been washed to within an inch of their existence, the bit of the service that actually saves lives was running like a well oiled
machine.
I was aware of the
comedic drama the other patient - some old guy who had been hauled in off the street
outside for his scan as he was having a last
minute fag, and wouldn’t come in until he had finished. I bet he was having a scan for a growth in his
lung. He was round; five feet five in every direction and too
breathless to undress himself. And the
nurses were great with him, humorous and cajoling but taking no nonsense.
Fried egg roll, black coffee and notebook!
Fried egg roll, black coffee and notebook!
After a hour of being zapped and blasted, I climbed into the
small Fiat and drove round (and round and round) to the garden centre…. Just to chill before going back home on
the motorway.
goodies at the garden centre....
These are the size of one of small asteroid.
goodies at the garden centre....
These are the size of one of small asteroid.
Wow, Caro, I hope they get to the bottom of your headaches. I started getting migraines only last year and I've come to know well the feeling that someone has shoved a meat hook into your brain through one eye socket and is wiggling it around in there. Those are the times I can't stand even the feel of my own hair against my scalp. The latest ones have made me throw up. I think I may have to join you on the MRI trail.
ReplyDeleteLast time someone I know went for one, he was highly amused -- after the clanking and clattering the machine made -- to note its model name was 'Symphony'
The bright side to this is I never realised one of the possible causes might be the size of my brain!
We all knew you had a big brain, Caro. And the fact that it may be creeping down your spine explains the twisted sense of humour. Seriously, I hope that what they find is not serious and that they can resolve the agonising migraines. Just be thankful YOUR election cycle is only six weeks or so - in the States it's perpetual. Enough to given anyone a migraine.
ReplyDeleteYikes, Caro. I hope and pray the docs have a easy solution. I used to get four-day blinding migraines. Luckily for me, the acupuncturist made them go away. I am so old that there weren't MRI machines when mine first showed up--so I didn't have to find out scary details about my brain.
ReplyDeleteWe don't have National Health in the US. We do however have all of the negatives you list AND we have to pay dearly for the lack of service. The Glasgow healthcare trouble we do not have in NYC is parking problems. NO ONE here drives to the hospital. We have great public transportation so we take the subway, or a cab. In fact, unless one is unconscious, here in New York one takes a taxi to the emergency room. It's the fastest way to get there. Then, of course, if one is breathing or not bleeding from an artery, one waits five to seven hours for treatment.
If misery does love company, I am sure you find all this extremely comforting.
Man, what a headache, a real pain not in the arse! My sympathies overflow like a small balloon stretched taut by too much gray matter, just waiting for some small prick to come along and release it from its misery... hmm... wait a minute... I seem to have lost the thread of this analogy.
ReplyDeleteThanks for your charming humor in the face of trying times. Be well, friend!
Stan's quip about a "six week election cycle" brought to mind a medical warning about a certain blue pill, but I decided it was too old and reaching a joke even for me. Besides, there is little humor in what you're enduring...though you somehow manage to find it. You're simply amazing. Fingers crossed and prayers said.
ReplyDeleteThanks for all comments. I don't know the Americans survive the electioneering in the USA, it seems to go on for ever, and the minute somebody gets elected, it starts all over again. I think I would be walking about with a bag on my head to avoid it all.
ReplyDeleteZoe, take comfort that only busy effective people get migraine- it's not nice but it does force you to lie down and do nothing. McIlvanney's Laidlaw has the best detective migraine I've ever read. (Willie is a sufferer himself).
Annamaria, you have spoiled all my beliefs in the American health care system, all garnered from 'House' where everything is shiny, new and working.
Except Hugh Laurie, who is marvellous of course.
Jeff, one day we shall sit in a bar and swap jokes about the wee blue pill, stiff necks and electric garage doors.
EvKa, thank you for your good wishes, I am thinking of getting a hairnet, like the type they wore in the munitions factory in the 40's. I will wear it round my neck like a sling to hold my brains up. I think the look catch on.